1. WHAT ARE THE AIMS OF THE STUDY The loss of a loved one can trigger many different emotions and responses, however, this is often linked to one’s cultural background. For example, bereavement rituals and coping strategies can be different among cultures. In most cases the initial intense grief reaction dissipates after time. However, some people experience persistent grief and suffer greatly, so that they cannot function properly in their everyday lives. These people suffer from a "Prolonged Grief Disorder". The criteria used to identify "Prolonged Grief Disorder" are based on western societies and have been researched in European, North American and some Chinese populations. We want to understand how grief can be measured in a culturally appropriate way. Therefore, this study explores different signs of grief in bereaved individuals of different cultures who currently living in a country different from the place of origin.
2. WHO WILL PARTICIPATE
People who meet the following criteria can participate in the study:
3. PROCEDURE OF THIS STUDY
In this project we will ask you to complete a few questionnaires about your experience of grief and your general health and mental health. This will take about 30 minutes.
4. WHAT IS THE BENEFIT IN PARTICIPATING?
The results of our study will help us to better identify those in distress and contribute to long-term support of people who suffer from a distressing experience of bereavement. It will allow psychologists to find the best ways to help individuals overcome past experiences. This is particularly true for people who are displaced from their homeland and may have experienced multiple loses. In addition, participating in this research study may allow you to openly talk about your experiences and feelings, which can be a major benefit to the grieving process.
5. RISKS AND RIGHTS TO WITHDRAW
The interview questions will ask you to share information that is of an emotional and personal nature, and they may cause some brief emotional discomfort. The participation in this study is voluntary. You are free to refuse to respond to any questions that are uncomfortable. You have the right to withdraw your participation in this study at any time with no consequence. In case of a psychological crisis during the survey, you can call or write one of the below mentioned contacts (Mo-Fr from 9am to 5pm). The contact information will be displayed at the end of this page, as well as at the end of the survey.
6.CONFIDENTIALITY/ANONYMITY OF DATA
We will collect the data anonymously (e.g. you do not need to provide your name). Any information that is obtained in connection with this study and can be identified with you (gender, date of birth), will be separated from the rest of the questionnaire data and encrypted meaning that any reference data that could identify you is deleted and replaced with a code. The code list always password protected and securely stored. Therefore, those people who do not know the code cannot draw any conclusions about you. Therefore, in a publication, the summarized data is not traceable to you as an individual. Sometimes there is a requirement for a journal to publish that individual data (so-called raw data). If individual data needs to be transmitted, then the data is always encrypted and therefore not traceable to you as a person.
All persons who have access to your data in the context of the project must abide by the above standards for encryption and confidentiality. As this is an international study data may be sent abroad to the partnering institutions for analysis. The data and samples are encrypted according to the Swiss ethics procedures. Access to this encryption is only possible for the local lead project managers. The database abroad has equivalent standards as the database in Switzerland. The project leader is responsible for compliance with national and international data protection guidelines who ensures an equivalent level of data protection abroad.
All files and all research documents will be securely locked and kept for 10 years as required by Cantonal guidelines. Online personal information will be encrypted and stored on a secure server at the Department of Psychology, separately from any questionnaire data so that the information cannot be linked. Only the research team will have access to study materials and only the project manager will have access to the encrypted and coded participant data. As the data is collected anonymously, if you withdraw from the study the previously collected data will remain confidentially encrypted and securely evaluated and stored.
This project may be reviewed by the responsible ethics committee or by the institution that initiated the project.
All Participants of this online-survey have the chance to win 1 of 4 CHF 50.- Migros-vouchers (or Amazon-vouchers if you live outside of Switzerland). If you are interested in participating in the tombola, we'll ask you to leave your E-Mail address at the end of the survey.
The University of Zurich has liability Insurance for this project.
9. FOR FURTHER INFORMATION
The research team will be glad to answer your questions about this study at any time within working office hours 9 am to 5pm. Once the study is completed, we would also be happy to inform you about the group results of the study. If you are interested in the results, we'll ask you to leave your (anonymous) E-Mail address at the end of the survey.
Any ambiguity, fears or emergencies that arise during or after the project, you can always contact one of these contacts. If you have any questions about this study, you can reach the research team by email: email@example.com